Archive for the ‘Fibromyalgia’ Category

I don’t know what’s been with me lately, but I’ve really jumped into this being 40 thing. I finally realized that I skipped the Adulting upgrades from 1.0 to 2.0 and most of the 3.0 upgrade. For whatever reason, Life just kept letting me pass and move forward like a poor kid falling through the cracks of the education system.

As can be referenced in my previous blog post “Option Paralysis,” my M.O. is pretty consistent in regards to my financial (and other stressful) problems. I stick my head in the sand like an ostrich and hope that in my ignoring of the problem that it will just go away. Of course, that’s not generally how things work. And for some reason I’m starting to take responsibility rather than running away.

It probably has something to do with the amount of support groups, therapy sessions and Step Work I’ve been working on for almost a year. October 22 will be my anniversary of Recovery work. Even though my sobriety is not as long lasting as the work I have put in, it’s ok. “Progress not perfection,” right? It doesn’t mean I haven’t learned some pretty incredible things. I’m in Step Four right now, which I’ve barely even begun and it’s brutal already. “One Day at a Time” is probably the most well-known slogan out there. I definitely have days like that; sometimes I have “one hour at a time” and even “One Minute at a time.” A lot of people do. I feel like I can’t even concentrate on someone’s three minute share sometimes. But that’s neither here nor there as this post is about my positive current experiences, not the rough road of Recovery.

I’ve noticed how I have had a more relaxed outlook on things; I’m not so uptight. But don’t mistake my kindness for weakness – I am more honest with others when I feel I need to say something and when I need to set boundaries for my own good. I’m less apt to let others take advantage of me and my vices. It’s probably like the slogan “Let Go and Let God,” although my Higher Power does not have the name “God.” But I understand and it’s not as difficult for me to substitute the word “God” with “Higher Power” as it was at the end of last year. Gratefully, I had some experience in another 12-Step program a few years ago that helped me identify what I understand my Higher Power to be.

One of the things I noticed on my first go round with the Twelve Steps was that they are great life lessons. Even if you don’t have an addiction, the philosophy behind the steps is valuable for anyone and everyone. Kind of like my oft-recommended literary favorite “How to Win Friends and Influence People” by Dale Carnegie. I hear and learn things in “the rooms” that seep into my subconscious and some things are a bit less subtle; I can feel that I am changing inside and I’m really ready to embrace these changes, for once.

Yesterday, instead of ignoring the voicemail telling me to call Sprint for “an important notification about the status of [my] account” I listened to it and actually acted upon it. I owe so much money that I have no way of paying until the first of the month. I called and tried to see about what was possible for payment plans and it was indeed, an option. What a wonderful surprise! The other day I tried it with my bank as well. I had two insufficient funds fees leaving me with a -$5 balance. Of course being on a fixed income, that is devastating when I won’t be paid for another 2 weeks. Well, I called up the bank and explained my situation and wouldn’t you know it? They reversed not just one, but both of those fees and I was able to go to Ralph’s and buy some TV dinners. Good times. Both of these things would have had negative outcomes had I not asked. And like “they” say, the answer to any question you don’t ask is always going to be “no.”

I’m also taking my nutritional intake pretty seriously. I’ve lost about nine pounds in the last month or two. I walked my roommate’s bike to the shop yesterday to get the tires filled with air so I could start riding it. I need to find an excuse to get on it every day, just to incentivize myself to do so. I know I shouldn’t have to, but I also know myself. I have to take more responsibility for my actions (or lack thereof). It’s as though the big 4.0 came with a side order of “Grow the Fuck Up.” Frankly, I’m not sure how I feel about that, since I’m running the 4.0 on the 2.0 operating system. I just don’t feel old enough to be doing all this Adulting. Which is pretty ridiculous as most people I know (who are my age) are married with kids, and/or well into their career, if not straight up retired, by now. Not to mention the handful of them that have unfortunately even died. This is the year.

Point is, I’m pulling myself up by my bootstraps and finally starting to get my shit together. It’s about fucking time.

You Don't Look Sick23 SEP 14: Today was one of my most noticeable examples of The Spoon Theory as how it pertains to my life. Or at least the life I am still coming to know, living with Fibromyalgia, Depression and Anxiety, among other things.

The Spoon Theory explained on Wikipedia, in a nutshell:

Spoons are an intangible unit of measurement used to track how much energy a person has throughout a given day. Each activity ‘costs’ a certain number of spoons, which might not be recharged until the next day. A person who runs out of spoons loses the ability to do anything other than rest.”

The origin of The Spoon Theory can be found here, in Christine Miserandino’s essay of the same name. It describes her struggle with Lupus and how she explained it to her friend, who did not understand and like many others may have at one time told her: “but you don’t look sick.” I know I have heard that phrase more times than I remember. Fibromyalgia (as I have), Lupus, Rheumatoid Arthritis, and other chronic pain diseases and syndromes have taken to using this neologism of The Spoon Theory to explain the struggles we all face with our respective malady/maladies.

So many different things can and do affect the level of pain and aggravation I have each day. One of the worst culprits is not enough/lack of sleep. I don’t usually get up early anymore, but because I was going to a taping of The Price is Right with Drew Carrey (hoping to get asked to “Come on Down” by George Gray) at 0830, I got up between 0600 and 0630. As the late great Robin Williams said in Good Morning, Vietnam, “what’s the ‘oh’ stand for? Oh my God, it’s early!”

Now, despite having lived in California for just over eleven years, I have never tried to get on The Price is Right – why? I don’t know. I guess it never occurred to me the amount of time involved to get in line to get in another line, to get green screen pix in front of the wheel, to wait in another line, to interview with/impress “The Dude,” Stan, to move to another line, to get to order and eat lunch, while waiting for another line to be randomly scattered throughout the audience and wait for just a wee bit longer to finally get the show on the road. Holy hell. But that was not even all that bad as all the lines had seating areas and we are no longer experiencing 100+ degree weather. It was once things got rolling that there was this need to ride the emotional roller coaster along with each contestant, whom, if you are social you have probably already talked to at least once outside during the five hours you were herded about like cattle. It wasn’t long until my arms and hands were sore and weak with what seemed like endless clapping. Of course, this is in addition to the soreness in my throat from screaming at 100% of my all every five minutes, not to mention having the worst dry-mouth ever – a combination of medication side-effects and the fact that no food or drink is allowed in the studio.

As is my tendency, I just kept going full-bore and tried to relax in the few commercial breaks we had in the show. The studio itself is extraordinary. There are hundreds of lighting fixtures and beams, poles, curtains and lights and squiggly designs that made me think this must have been the set of Laugh-In back in the Smothers Brothers days. The stage and audience space are optically intriguing as they are a fraction of the size they appear on TV. But I digress…

By the end of the taping I was spent. I picked up my green-screen memento picture and a deck of The Price is Right playing cards for my collection. I headed back to my car and just sat there for a while trying to decompress and was already dreading the fact that I had planned to go to another taping just a couple hours later. I already knew that I would need reminding to never plan two tapings in one day again. I already felt like I was borrowing spoons before I even went to pick up my friend for the @midnight taping.

Thankfully much shorter an adventure, the @midnight taping completed whatever I may have had left. Endless clapping to muscle fatigue. I had no idea “fun” could be so exhausting and ultimately – painful.

When I got home, I couldn’t do anything but lay on the couch at 7pm and tried to set an alarm for 8:30 to go to The World Famous Comedy Store. That didn’t happen. 3 hours later still groggy and asleep on the couch. I woke for just a little bit. To Facebook, to Twitter, to play @midnight’s #HashtagWars. By 12:30am I was in bed and was able to watch an episode of Deep Space Nine before passing out. Nine hours later… I may have gotten most of my spoons back.

From Miserandino’s essay:

“Once people understand the spoon theory they seem to understand me better, but I also think they live their life a little differently too. I think it isn’t just good for understanding Lupus, but anyone dealing with any disability or illness. Hopefully, they don’t take so much for granted or their life in general. I give a piece of myself, in every sense of the word when I do anything.”

At 12:30pm the next day I typed this with heavy eyelids and prepared for my next outing – a taping of The Late Late Show with Craig Ferguson with guests William Shatner Jackie Geurrido and Judd Apatow. Le sigh… And the beat goes on. Dada doom dadoom dada

I NEED A BREAK

Who’da thunk 21 accumulative days of 2 trips in one month would be such an exhausting vacation? I always feel like a need a vacation from my vacation. Is that everyone? Or do I just overdo everything I set before myself.

Texas was fun but short and also hectic. It’s so strange to have the perfect storm of anxiety, overwhelming socialization, not enough time and too many activities to cram into 5 days. Great seeing my friend and her husband that I haven’t seen since their wedding 2 years ago. And being introduced to the music of the live band they had, The Zydeco Dots, was awesome. I felt Creole down to my soul. [Note to self: Must go back to NOLA someday] I even got to play the accordion, which I didn’t know I could figure out so quickly.

One of the greatest things that happened though? I slept. I slept for hours on a floaty in my friends’ gorgeous pool, in the middle of the night with the stars overhead and nature all around me. I was the only one outside and it was glorious. Seems such a simple thing, that I’m surprised at how calming and unique the experience was.

I was back one day for two doctors’ appointments before it was off to LAX once again…

I knew there was a reason why I only planned to be home in New York for 6 days. It was my 20th high School Reunion – the only reason I went back in the first place and it turned into a two week whirlwind adventure. Sadly, not nearly enough time was spent with old friends. Considering how much time I spent in New York and travelling, it almost seems all for naught over a four hour party where half the people I couldn’t place to save me life. But I’m getting ahead of myself. Let’s start at the beginning and work our way winding to and fro.

As the door was closing on my plane from Los Angeles, before we’ve even gotten the announcement to turn off all electronic devices, I received a text from Southwest Airlines informing me that the next leg of my flight from Atlanta to LaGuardia has been cancelled. I asked the flight attendant what that meant since I have never had that happen before and she asked me if I wanted to get off the plane. I declined as she had no helpful information other than going to the kiosk at C16 when we arrived in Atlanta and ask what was up with the cancellation. I slept for shit on the plane and having stayed up all night out of trip anxiety which is all too common for me I was miserable and in pain from my Fibromyalgia and god only knows what other maladies lurking around the dark corners of my mind. When I got to Atlanta, “C16” informed me of a huge storm in NYC and that not just mine, but ALL flights into LaGuardia had been cancelled and everyone and their brother was getting replacement flights. There was no way for me to get even close to the city within the next 24 hours and I stumbled around for a couple hours trying to figure out what to do and where I could go and how I would get to NY once I got there. I thought about Boston where another classmate going to the Reunion lived but unfortunately she had already gotten to New York to be with her family. I then thought about going to Louisville, KY to visit an old Navy friend of mine, but she had to work and was unable to get out of it with such short notice. My last thought was Baltimore. I knew another high school buddy who either lived in Baltimore of Washington DC (couldn’t remember at the time) might be able to pick me up and drop me back off at the airport the next day. I had already talked to her a few weeks prior about going to the Reunion and she said she probably wouldn’t go, as her family had planned a trip to Myrtle Beach at the same time frame.

When I reached her she said that she would of course pick me up but why not just head up with her two mornings later as she was driving up for the Reunion. I was thrilled that she was going to be able to make it and thought what a perfect opportunity to see her family I hadn’t seen in years. She had to work the next day so I would have the whole day to myself and I had an “A-ha” moment. What if I drove her to work and then borrowed her car to drive to Richmond, VA (which wasn’t all that far away) to see family that I hadn’t seen since late fall of 2000 when I got out of the Navy. As luck would have it that idea had even better merit when she told me she was working in Fredericksburg, VA almost half way to Richmond and of course I could borrow her car. I was elated.

I got to see my cousins and their children, my aunt and uncle, and my grandfather on my father’s side. It was wonderful! I even sat down and went over some Ancestry.com entries with them, as that is a huge hobby of mine.

The next day my friend and I drove up to Upstate New York just in time for the reunion and my nerves were shot. I was so scared/nervous/paranoid about my swiss-cheesery brain not remembering people I knew I should. Within a couple hours my anxiety was ebbing and I felt like I was finally getting into the groove of the evening just as it was winding down. But of course. I know that the feelings I felt that night will have to be dissected with my therapist later this week. Insecurities and all… Maybe I need to up my meds. Just sayin’. At least it wasn’t nearly as bad as I was fearing; Grosse Point Blank and Romy & Michelle weren’t the best study guides. Facebook on the other hand, helped greatly. Interacting with old friends and looking at their photos, getting to re-know them and learn of their families is one of the only reasons that I felt comfortable around them at all.

Two days later I was at a huge family Pig Roast and saw nearly my entire living family plus some on my step-father’s side. Some of them I had not seen in 15-20 years. It reminded me of younger days when we would gather at one of their houses for Thanksgiving or when we would sit around a large room and do our white elephant present game at Christmas. It’s nostalgic memories such as this that I need help controlling. I feel as though I live in the past. Not only that I live there, but that I dwell on the feelings I had there and then and I create this sense of longing and yearning for days that will never be again.

I got to see more friends and family over the next few days and it was overwhelmingly wonderful and oh so close to being too much of a good thing. As I write this in the quiet of my apartment, I realize other than going out for small necessities, I have basically hermited myself away and truly enjoy being a home-body and continuing my watching schedule of The Twilight Zone and House, M.D.

I have started drawing again, which is great. And writing – evidently. I need to also work on some stand-up and get back into doing mics. Much like not working out I notice the longer I go without doing it, the less likely I am to keep doing it.

Some of this might seem a bit rambling, not to mention a bit long, but nobody said a blog about Depression, Anxiety, Fibromyalgia, Tension headaches and the like would always be full of unicorns and glitter. Although I do like Unicorns. And glitter.

…oh look! A butterfly!

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One day of procrastination turns into two days, three days, a week, a month, six months. Where has the time gone?

My writing is no different than my attempts to get healthy. I haven’t written in six months, as is evident by the sizable gap in my blogs, not to mention the empty journals sitting in a box next to my office table. Granted, there are plenty of reasons why:

FEB – Had to leave my apartment because I could no longer afford living there since I stopped working in November. Scrambled a lot trying to figure out if I would have to resort to living in a shelter (a huge inconvenience with an unruly dog).

MAR – Money from State Disability finally came through from November, helping me out financially with the transition. Spent several weeks hotel hopping with my future roommate and our three dogs. The next several weeks were spent couch surfing.

APR – Finally moved into an affordable place and started piecing things back together in the shambles of my life.

MAY – Quit smoking and starting watching what I ate somehow, despite the continued feelings of anxiety and depression and the the feeling that things were crashing down around me. Started P90X, a workout program that I have had for years and had previously never made it past the first week. Started a Food Elimination Schedule created by my Beachbody Coach, Monica Parodi, as I worked towards eating clean. Started drinking Shakeology, which drastically changed the level of health of the food I put into my body. Became a Beachbody Coach to save money on Shakeology and get a great discount on products.

JUN – Went to the Beachbody Coach Summit in Las Vegas to learn more about the benefits of working out, drinking Shakeology and helping others reach their fitness goals (if that includes you, check out my Instagram for details). Met a lot of great people from my Team, as well as people from all over the U.S. and Canada. Enjoyed Vegas for the first time. Met Tony Horton, creator of P90X, which just made my whole trip worth it.

JUL – Went home to New York for a Class Reunion of the class ahead of me (I had always had more friends in that class than my own); got a good dress rehearsal of my reunion for next year. Learned more about myself in regards to family issues that have been raging for decades; it’s interesting how my brain tells me who I do and do not want to have influencing my life and emotions as I get older.

AUG – Finally, a years long project takes place – an expo put together by 20+ people for kids including vendors, donations, raffles, celebrities; a labor of love that turned out to be more non-profit than we had planned, on so many levels. On top of which three family birthdays and surprise bills of nearly $1000 for electric, thanks to living in 100+ degree high-desert, begin to ramp up my anxiety like there’s no tomorrow.

SIDE NOTE: Financial troubles have almost always exclusively been the one thing that will send me over the edge. Especially when I feel as though there is nothing that I can do to make the situation any better.

I also realize that I have slacked off in regards to my workouts due in part to traveling as well as the fallacy of thinking that I am not getting anywhere and I’m not seeing the progress I would like. In truth I haven’t completed much more than a month and a half of the prescribed workout plan, even though I should have finished my 90 days of P90X on August 9th, had I not missed any days at all.

That being said, I’ve spent the last week trying to ramp up to starting P90X all over again. The idea of 90 more days causes hesitation, thinking that I will be bored, while just thinking about it exhausts me to no end. I need to remember that I’m planning on working out for the rest of my life, what’s the big deal about 90 days? I’ll be done in no time, I’ll be physically healthier than I have ever been, and maybe, just maybe, I’ll be able to go back to work. We’ll see. Unfortunately, I’ve been sleeping so much lately and definitely not eating enough of the right calories to sustain the energy I need to do daily activities, let alone work out. And yet – despite how I frequently feel thanks to my mental health, I have never actually given up on myself; I’m a survivor and a fighter and this too shall pass.

Option Paralysis 2 I am swimming in to-do lists and quite sure I’m on the verge of drowning due to option paralysis. I had always thought my best friend coined that phrase, but alas I was able to find it in Urban Dictionary.  It has always been such a great way to describe how I often feel; when faced with so many choices/options I get overwhelmed and in not knowing where to start – I just don’t.

Apparently I am not alone, as many people feel overwhelmed and inundated with “options” these days. I’m sure the ebb and flow of technology and all that can be achieved at a moment’s notice on the interwebs has aided in this phenomenon. Robert M Brecht, Ph.D. writes that “psychological research over the last forty or so years has established the correlation between providing choice and increases in intrinsic motivation, perceived control, task performance and satisfaction with life. […] There comes a point when the choices available to us become counterproductive.” More of his conclusions can be found in his blog post “Consumer Marketing: We All Want Choices… or Do We?” Another blogger, M. Farbman, had this trouble in youth when going to Baskin-Robbins – 31 Flavors – the perfect analogy in the blog “Option Paralysis.” Although it must be harder now, as my last count put them somewhere over 57 flavors.

My most pressing issue: I’ve recently been served – no, not by a crowd of dancing teenagers – rather, with an eviction notice (again?!?! That’s another story). This is due to my recent working cessation while dealing with severe anxiety and depression, sprinkled with this awesome nervous system disorder of Fibromyalgia. I have been trying to figure out what I’m going to do with the upcoming homeless horizon that I am staring at like a sun, burning holes into my retinas. I had hoped that I could get assistance from New Directions, an amazing organization whose mission “is to empower veterans and facilitate their successful return to families and society.” They helped me get into the apartment I am in now when I had accepted a local job; now not working, I am in more need than ever. Unfortunately, due to funding constraints they are no longer able to assist me.

I am seeking help from several other organizations, but I have a feeling I will still need to leave the apartment I am in for different accommodations. I am finding that a room, or even a shelter is going to be difficult as I have my companion dog who has been with me for three years and is not able to be with me at most of the options I have; I cannot give her up as she is the only family I have locally and she relies on me as much as I do on her. Perhaps I will be lucky enough to find accomodations that are better for her, with a yard she can run in and not be so confined.

Logic surfaces from time to time, through the Fibro Fog and Anxiety (a steel wool-like cloud that ceases most logic, clarity and cognitive thought), and I realize whatever my next place of residence is, I will have to pack up what remains from my last move and put it in storage. It will be much easier to go from place to place in search of the right one with just my dog, my car, a duffle of clothes, and an air mattress. Easier said than done, however, as money, a truck and movers are required to facilitate this… oh – and a storage unit. I look around my apartment and shudder to think about packing …again. It’s so time consuming and energy sapping, but it has to happen. There’s laundry to do, dishes to wash, clothes to weed through to lighten the load followed by the subsequent donation to Good Will. When I get overwhelmed I sit on the couch and watch TV; God help me if there’s a marathon on, whether it be Law and Order, The Matrix, the Alien Quadrilogy, Family Feud… enough is enough. BACK TO WORK!!! My body hurts, my mind hurts, my heart is uncertain and the World feels like it’s closing in around me – but I must do SOMETHING.

I’ve never given myself a solid routine to maintain my own life – even a simple routine for when I wake-up or go to bed. Those little things seem so easy …and yet go undone. My mind freezes and my body follows suit until some day or hour or minute finally comes when I know that there is no other way but to act. It’s that last minute action that has always saved me, but it would be so much healthier, I am sure, if I could just learn to get my shit together on a regular basis. My success at last minute projects has done nothing but give me negative reinforcement of my bad habits. I hope and hope that I can start giving myself structure but something always gets in the way, the flow of my day-to-day always changes, I think I get ahead and an unexpected expense happens, things are swell and then I have a nervous breakdown. For the love of Pete – it’s always something – my life in retrospect seems so chaotic. Is it because I am better suited to a structured life, a life with fewer options, less choices? The military was perfect for me – but that, of course, is no more I am sad to say and I must live with that – or not, I suppose.

I know I’m not the only one going through these experiences, but more often than not – I feel that I am.

HYE 2013According to Wikipedia, a veritable wealth of reliability, “88% of those who set New Year resolutions fail.” I stopped making Resolutions a long time ago, not because it’s a bad idea to challenge yourself, but because I always seem to fail at them. This year, I’m trying something a little different – my solution to the Resolution – psychology and maybe a touch of reverse psychology.

First, let’s review 2012 for those of you keeping track at home. It started well with eating better in an attempt to lose the weight I had previously lost and regained, I quit smoking (for a time), I fell in love, I learned first-hand about Baby Mama Drama, I got heat exhaustion at work, I got engaged to an old flame, I cut off my hair for Locks of Love, I got laid off from work and went on unemployment, my dog got fleas for over a month, I fell out of love. Unemployment got messed up for six weeks and I couldn’t pay my rent and started to get evicted. The VA finally approved my disability for Fibromyalgia, but lowered one of my other ratings. I broke up with my fiancé, missed my Grandmother’s wedding, got a job offer in Los Angeles, moved to Los Angeles and started a new job. Stress started to weasel its way back into my life again and led to severe Anxiety and Depression like I had not known in a long time, I stopped working and started to go to more doctors and get on more medications. I started a blog, I started a Twitter account, I started to wonder if my day-to-day had changed forever. I ended 2012 not wanting to be anywhere, not wanting to see anyone and not knowing what to do – about anything.

So here we are, January 2013, and I have decided that rather than make resolutions, I will state a few things that I don’t want to do this year – some I truly hope not to happen, others I think that if I fail at them, it will be a good thing. Here goes: I’m not looking for a relationship, I don’t want to torture myself trying to quit smoking, I don’t want to keep feeling useless and afraid of myself, I don’t want to get fatter, I don’t want to be destitute and wonder when my next meal will be or where I will live. I won’t go off my meds because I forget or think I am better without, I will try not to sweat the small stuff, and I’ll try not to forget about consequences and what leads to them. I don’t want to miss out on family gatherings, I will not rely on others for my well-being, I won’t overwhelm myself with tasks and impossible goals and I won’t forget that I am only human.

Aside from a scant number of references of theological beginnings of New Year Resolutions, Wikipedia cites a Wall Street Journal article, “Blame it on the Brain” by the controversial journalist/blogger Jonah Lehrer focused on “The Science Behind Failed Resolutions.” It explains how the portion of the brain that controls willpower, the frontal cortex, “is also in charge of keeping us focused, handling short-term memory and solving abstract problems.” An overload of tasks and subsequently a lack of willpower (giving into temptation) seems inevitable when you set multiple resolutions for yourself at once; you may believe you are trying to improve yourself but instead you are setting yourself up for failure. Pace yourself, research what it takes to form habits and plan how you will reward yourself. Give yourself enough time to attain the result you are looking for before moving onto the next goal.

In the past, I’ve started eating better, quit smoking, started exercising and maybe even threw in one or two other behaviors that were not my usual habit. That is why I have failed. Knowledge is power – and learning more about the brain and how it works, not to mention more about my specific disabilities, may give me the knowledge to harness my willpower – or at the very least, give me a better understanding of how to get my hands on some.

OstrichSyndrome I keep hoping (even thinking) that I am feeling better as the days and weeks pass. However, I tend to sink back into a very dull and dismal thought process that I am extremely uncomfortable with and I fall into what I have categorized as “Ostrich Syndrome.” I find it akin to, but rather separate from, “Fibro Fog” that is generally associated with Fibromyalgia.

Now, by no means did I coin this phrase, but I did Google it to ensure that I’m not just insane. The 31,600 results that followed assured me that this ideology exists, although mainly used to characterize business management and how this “Syndrome” pertains to the inner workings (or lack thereof) of a business plan or organization, or political denial. Or so I have gleaned from perusing some of the said Google results. (On a sidenote: it’s also the name of a band with a track called Prince of Babylon produced by One Million Heist, “a non-profit independent netlabel, with various genres and artists with one goal, to be heard.” Some very interesting tracks are found on Sound Cloud).

Urban Dictionary has the first result and closest description of Ostrich Syndrome as it pertains to myself and how I feel when I just want to close the shudders (as though anyone has shudders anymore), not answer my phone, eat snacks instead of meals, and couch potato it all day – which may include an afternoon nap while I wait for night to come just so I can go back to sleep. Ineteresting enough – no anxiety that I can tell. I know I have responsibilities, I know I have bills to pay, I know that there are things to do that really shouldn’t be put off until tomorrow – I just can’t seem to make myself give a damn. Hell, I was supposed to hang out with a friend today who is off from work (whom I’ve been hounding to hang out with me). I was also supposed to go to a performance tonight that two of my other friends are in only once a month. I just couldn’t pull my head out of my ass to do these things – because I’m busy hiding – hoping that hiding will make my problems go away. Newsflash: it won’t.

I would like to give a shout out to a fellow Word Press blogger, Jackson Quigg Associates, who gave me even more insight into Ostrich Syndrome and a term I was previously unfamiliar with: Permissibility. The blog states that it “occurs when someone allows something to continue to happen, even when they’re in a position to stop it or have a significant impact upon it.” I am allowing this to happen. I am my own enabler.

“First step is realizing you have a problem” so they say. Great. I am aware that I am this way. Now what do I do about it, especially when I allow it to happen and don’t give a rat’s ass? I’m stumped. How does a broken one fix themself? That’s worse than “the blind leading the blind.” And is this something that I can fix? Is it a part of my diagnosed Depression, Anxiety and/or Fibromyalgia? Or did I get blessed with other shortcomings as well? Only time can tell.

Have you felt this way before? How long did it last? Any suggestions?

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As anyone with Anxiety, Depression, or frankly, active brain waves knows, it’s good to have someone you can trust that you can talk to about anything. Among those I consider in my life – my psychiatrist, a man I trust beyond words who, other than diagnostically speaking, doesn’t judge me. I can be completely honest without fear of being alienated due to my unfiltered verbal regurgitation.

I value his sessions so much that even though I’ve moved to Los Angeles, I still go down to the San Diego VA (Veterans’ Affairs) just to see him. I had an appointment just the other day. I had almost not gone due to how piss-poor I’ve been feeling these last few weeks and seriously considered a phone call to him instead. Thankfully as the appointment drew near I’d been feeling better and made the trek. I spent two hours and forty minutes driving and I just made it on time. We had one of the most productive sessions to date and I even told my doctor about starting a blog. He is very supportive of my efforts.

My last trip to San Diego I mentioned to people too late and no one could hang out; this trip I thought ahead and had plans to see one of my friends and his family and then dinner with a few old teammate’s of mine (I used to play Women’s Pro Football – but that’s a different story). I wound up not having much time before getting to dinner and my friend had to get his exercise in before the evening was out so we went for a walk with one of his sons and caught up on the last few months. Low and behold, forty-five minutes and 1.8 miles later it was time to go. My ankles had been hurting since about half way, my legs were relatively on fire with the onset of circulation in them for once and I hadn’t eaten anything all day. Not the best way to take care of a chronic pain/headache/mental condition such as I have, but I like to live dangerously.

Off to the sports bar to see two of my dear friends and finally get something in my tummy; I ordered a huge greasy bacon burger (no tomatoes, no onions, medium rare as usual) with a side of tater-tots. Tater-tots always remind me of high school lunch, cracked plastic green trays, sporks and pints of chocolate milk (sometimes 2%, depends). Maybe it’s just me.

It was a great time and it’s moments like these that remind me that even in my darkest times, solitary confinement is not the best idea. It’s always hard when you’re in the thick of it to remember the good things and hold onto them.

By the time we wrapped up it was about 9pm and I was dreading the two hour plus ride home to Los Angeles. I decided since I was in the area and it was only about ten minutes out of the way, I’d hit up my old stomping grounds at The La Jolla Comedy Store. I got to see most of my friends there and had some great laughs. While I was there I realized I was starting to have a Fibromyalgia flare-up. This is when, instead of this or that hurting and the pain going from here to there throughout the day, it’s in multiple areas at once and it just won’t go away. The longer the pain goes on the more distracted and irritable I become. My arms were aching something terrible and the pain started to make my whole torso feel like I’d been hit by a train. I tried to stave off the pain with light-hearted conversation with my friends and continued to fidget over the next hour or so. As they were closing I decided to hit the road.

Since it was only about 10:30 I figured that by the time I made it up to L.A. that The World Famous Comedy Store on Sunset would still be open. It would be fun to hit up my new favorite spot as well as the old in the same night despite how I was feeling; it was relatively on the way back home, so why not? The drive back was shorter, just over two hours and I pulled up to the Store at around 12:30am. My hips were killing me from all the time in the car but I was happy to be there and enjoying more laughs. A few hours there and I was home by 3am.

Boy, did I pay for the prior day’s shenanigans. I couldn’t get out of bed until at least 1:30 in the afternoon and even then, I was a zombie. If it wasn’t for my too-smart-for-her-own-good dog, who has the wherewithal to let me know when she has to go out, I may not have gotten out of bed that day at all. I’m quite sure I only had some instant oatmeal and stared at the TV for an hour before deciding to go back to bed. I slept on and off for several more hours and finally had some strength by 6:30-7:00pm that night.

This is part of my many ongoing problems. I throw my circadian cycle off by having fun into the wee hours, or by being in pain or having racing thoughts and being unable to sleep so I toss and turn for hours. I’d rather do it by having fun, but the results are generally the same. Bedtime gets later and later. Wake time gets later and later. Afternoon naps come into play and nutrition, amongst other things, goes to the wayside.

Although easier said than done, I need to take better care of myself, that’s really all there is to it. I need to force myself into a routine and even if I maintain late nights I have to get up by a certain time and work – work hard – at taking care of myself. It’s not that I can’t try to live a full and fun-filled life, it’s that I have to work on making it healthier and more manageable. I need consistency in my life. Moreover, it’s a matter of having indifference for myself and daily – struggling against it.

cure-fibromyalgia-tender-pointsI was twenty-one when my Fibromyalgia started. Of course, neither I nor the doctors knew that’s what it was for quite some time. I was in the Navy at the time, stationed in Texas for a “C” School of my rate. It was spring going into Summer and temperatures were already on the rise to the point of several black flags during the two months I was there, which restricted our physical training outdoors.

Mid-April, I decided to go on a health kick; I quit smoking, started eating better (how could I not – it was an Air Force Base), and I stepped up my exercising; I even bought Susan Powder’s Stop the Insanity exercise tapes (not my first, nor last attempt to get fit). Being in the military, we’re expected to do PT (Physical Training) at least three times a week to keep ourselves fit for the annual PRT (Physical Readiness Test), therefore exercise can only make me better, right? Or so I thought.

I started running several miles a day, for three days, and at the end of that third day my right knee was hurting pretty significantly. Despite rest and the Vitamin M (Motrin 800mg – the military’s usual prescript despite whatever ails you), the pain would not go away. It started to radiate above and below my right knee and felt as though my muscles and tendons had been damaged. Physical therapy was also of no use and in no time I was onto my next school in Florida for another two-three months and still on Limited Duty, which restricted my physical activity and exempted me from PRTs.

While I was in Florida the pain was spreading through most of my other muscles and joints and started to become the “widespread pain” that would characterize Fibromyalgia. I needed narcotic painkillers to feel any relief (which, of course without physical evidence of injury, they were hesitant to give me) and the unknown diagnosis spooked the docs and my detailer, the person who assigns you to your duty stations. Subsequently, I lost my orders to Misawa, Japan and instead had to choose between Ft. Meade, Maryland and Hawai’i. At this point, I had been in so much pain for so long that I just wanted to be close to my family in upstate New York. I chose Ft. Meade, Maryland. As anyone in the military knows, it seems they have no desire to accommodate needs or wants of military members and it is the “needs of the Navy” that dictate everything. That being said, I was cut orders to Hawai’i; had I chosen that in the first place – it would have been Ft. Meade for sure, I have no doubt.

Time and again we’d say to each other that something the Navy had decided didn’t “make sense.” The all-too-acceptable reply usually being “that’s the Navy for ya’,” as though common sense and military protocol are mutually exclusive. But I digress…

By October I was in Hawai’i and the pain had spread throughout my entire body. In November, there was finally a breakthrough when a civilian doctor working in the clinic ruled out all the usual suspects for my symptoms with a battery of tests: Lupus, Rheumatoid Arthritis, Lyme Disease, you name it. I had nearly all the tender points indicated in The American College of Rheumatology 1990 Criteria for Classification of Fibromyalgia1 and he finally diagnosed me with Fibromyalgia.

When I called my mother to tell her, she informed me that she had been diagnosed with it just two weeks earlier. That was fourteen years ago in 1998.

 

1http://www.fibroassist.net/Diagnosis/ACR%201990%20FM%20Criteria.pdf

splatter-grunge-wordpress-logoI am a disabled veteran. I’ve gotten used to saying that by now, despite the stigmata I feel in my heart each time it passes my lips or even my thoughts.

Recently, I had a pretty difficult time with my health, all of my service-connected disabilities came to a head at once and I was overloaded with Fibromyalgia pain, daily Tension (possibly Migraine) headaches and crippling Anxiety and Depression. I had to stop going to work and got a doctor’s note to be out for a few weeks. For the first time I’m putting in for State Disability due to my conditions and for the second time I feel my conditions have hindered my work performance and my day-to-day, this time to the point of not being able to cope – with anything.

In between the days that I couldn’t leave the house, besides to walk my companion dog, I ventured out a few times. In the thick of it, I was so anxiety ridden that driving on the freeway was overwhelming for me and I wondered what I would do if that feeling got worse or didn’t go away.

One of the best destinations I chose when I was in a sullen mood was the World Famous Comedy Store. I have several comedian friends and my whole life I have considered comedy the greatest escape from my sorrows; I love stand-up more than any other form of comedy and really get to let my hair down when I go to shows. It was a conversation I had at the Comedy Store with a friend that spurred my interest with blogging. Being a writer and an English Major, you’d have thought I’d have jumped on the blog-train years ago, but something always stopped me.

My friend and I got into a pretty in-depth conversation about my Fibromyalgia, Anxiety and Depression and he emphasized the need for me to get support; he suggested blogging. The seed was planted; in the last few weeks the idea has turned into more of a mission than just an outlet to express myself.

I’d like to not only express myself, but offer up my experiences to others. I, like many other people with disabilities, somehow always still feel alone, even though common sense dictates that we are not alone. I would like to give my support and in exchange gain the support of others that I know are out there, but that I do not know… yet.