Archive for October, 2014

You Don't Look Sick23 SEP 14: Today was one of my most noticeable examples of The Spoon Theory as how it pertains to my life. Or at least the life I am still coming to know, living with Fibromyalgia, Depression and Anxiety, among other things.

The Spoon Theory explained on Wikipedia, in a nutshell:

Spoons are an intangible unit of measurement used to track how much energy a person has throughout a given day. Each activity ‘costs’ a certain number of spoons, which might not be recharged until the next day. A person who runs out of spoons loses the ability to do anything other than rest.”

The origin of The Spoon Theory can be found here, in Christine Miserandino’s essay of the same name. It describes her struggle with Lupus and how she explained it to her friend, who did not understand and like many others may have at one time told her: “but you don’t look sick.” I know I have heard that phrase more times than I remember. Fibromyalgia (as I have), Lupus, Rheumatoid Arthritis, and other chronic pain diseases and syndromes have taken to using this neologism of The Spoon Theory to explain the struggles we all face with our respective malady/maladies.

So many different things can and do affect the level of pain and aggravation I have each day. One of the worst culprits is not enough/lack of sleep. I don’t usually get up early anymore, but because I was going to a taping of The Price is Right with Drew Carrey (hoping to get asked to “Come on Down” by George Gray) at 0830, I got up between 0600 and 0630. As the late great Robin Williams said in Good Morning, Vietnam, “what’s the ‘oh’ stand for? Oh my God, it’s early!”

Now, despite having lived in California for just over eleven years, I have never tried to get on The Price is Right – why? I don’t know. I guess it never occurred to me the amount of time involved to get in line to get in another line, to get green screen pix in front of the wheel, to wait in another line, to interview with/impress “The Dude,” Stan, to move to another line, to get to order and eat lunch, while waiting for another line to be randomly scattered throughout the audience and wait for just a wee bit longer to finally get the show on the road. Holy hell. But that was not even all that bad as all the lines had seating areas and we are no longer experiencing 100+ degree weather. It was once things got rolling that there was this need to ride the emotional roller coaster along with each contestant, whom, if you are social you have probably already talked to at least once outside during the five hours you were herded about like cattle. It wasn’t long until my arms and hands were sore and weak with what seemed like endless clapping. Of course, this is in addition to the soreness in my throat from screaming at 100% of my all every five minutes, not to mention having the worst dry-mouth ever – a combination of medication side-effects and the fact that no food or drink is allowed in the studio.

As is my tendency, I just kept going full-bore and tried to relax in the few commercial breaks we had in the show. The studio itself is extraordinary. There are hundreds of lighting fixtures and beams, poles, curtains and lights and squiggly designs that made me think this must have been the set of Laugh-In back in the Smothers Brothers days. The stage and audience space are optically intriguing as they are a fraction of the size they appear on TV. But I digress…

By the end of the taping I was spent. I picked up my green-screen memento picture and a deck of The Price is Right playing cards for my collection. I headed back to my car and just sat there for a while trying to decompress and was already dreading the fact that I had planned to go to another taping just a couple hours later. I already knew that I would need reminding to never plan two tapings in one day again. I already felt like I was borrowing spoons before I even went to pick up my friend for the @midnight taping.

Thankfully much shorter an adventure, the @midnight taping completed whatever I may have had left. Endless clapping to muscle fatigue. I had no idea “fun” could be so exhausting and ultimately – painful.

When I got home, I couldn’t do anything but lay on the couch at 7pm and tried to set an alarm for 8:30 to go to The World Famous Comedy Store. That didn’t happen. 3 hours later still groggy and asleep on the couch. I woke for just a little bit. To Facebook, to Twitter, to play @midnight’s #HashtagWars. By 12:30am I was in bed and was able to watch an episode of Deep Space Nine before passing out. Nine hours later… I may have gotten most of my spoons back.

From Miserandino’s essay:

“Once people understand the spoon theory they seem to understand me better, but I also think they live their life a little differently too. I think it isn’t just good for understanding Lupus, but anyone dealing with any disability or illness. Hopefully, they don’t take so much for granted or their life in general. I give a piece of myself, in every sense of the word when I do anything.”

At 12:30pm the next day I typed this with heavy eyelids and prepared for my next outing – a taping of The Late Late Show with Craig Ferguson with guests William Shatner Jackie Geurrido and Judd Apatow. Le sigh… And the beat goes on. Dada doom dadoom dada